Finding My Purpose: Navigating Accessibility and Advocacy

accessibility, Disability Advocacy, Personal Journey

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Finding My Purpose Finding my purpose as a woman with multiple disabilities has been a journey filled with unexpected challenges ...
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Welcome to my New Website!

Blog Updates

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Welcome to my new website! This blog reflects my life as a Christian woman with multiple disabilities, covering topics from programming and accessibility to faith and everyday challenges.
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My Medical Nightmare: How Things Have Gone Since My Family Moved to Pipe Creek

Medical

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About Our Move to Pipe Creek About 3 months ago, my family decided to move from Santa Fe, Texas, a ...
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A Strange Thing My Body Does: Curious if Others Experience Something Similar

Medical

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Discover an unusual bodily response to changes, including 'cold spells' and muscle spasms, experienced by someone with chronic illnesses. Read about specific instances and share your own experiences.
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Creating Structure: When my Autistic Brain and Chronically Ill Body Fight Each Other

Lanie's Personal Life

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Discover the complex interplay between autism's craving for structure and the unpredictability of chronic illness. This post delves into the frustrations of maintaining routines when faced with ever-changing health conditions and offers insights into potential coping strategies.
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When Multiple Disabilities and Chronic Illnesses Force you to Change Your Plans

Lanie's Personal Life

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Note: This post was originally written in 2020 and reflects my situation at that time. For the most current information ...
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My Sleep Apnea Journey So Far

Lanie's Personal Life

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Explore the unique challenges of managing sleep apnea as a blind person. This post details the journey from diagnosis to using an APAP machine, highlighting the need for more accessible medical devices and seeking input from others with similar experiences.
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Thank You Letter to Caregivers

For Caregivers, Lanie's Personal Life

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In this emotional thank you letter, a person with disabilities expresses deep gratitude to their caregivers. Learn about the countless ways caregivers support their loved ones, from managing health crises to celebrating good days.
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Product Review: This pillow might make you more comfortable if you spend much time in bed.

Helpful Products

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Discover why the Snuggle-Pedic memory foam pillow might be the perfect solution for those with chronic illnesses who spend a lot of time in bed. This detailed review covers the pillow's features, setup process, and benefits for people with conditions like fibromyalgia and sleep apnea.
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Just Got a New Diagnosis

Personal Journey

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Discover the process of being diagnosed with moderate sleep apnea when you have multiple disabilities. This post details the symptoms, sleep study experience, and upcoming treatment with an APAP machine, offering insights for others facing similar health challenges.
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